This. All of this! I could have easily written this blog post. Fortunately, this past year in particular, I’ve tried to be more discrete when it comes to what I share online. There is always – and I do mean always – so much more I would love to say. In fact, it ended up biting me in the butt once or twice. The funny thing is that in one case, one side of my family thought I was referring to them when in reality, it happened to be about something else entirely. In the other case, the blog post in question was over five years old. Five years! It is the only blog post I’ve ever taken down. I took it down more for personal reasons than any other concern. It was definitely a case where I wrote out of raw emotion more than anything else. The bottom line is this: Aside from close family and friends, I really don’t care what people think about me. Life is too short.
I’m struggling with this issue again. February is Turner syndrome awareness month. As a result, I want to write about my personal experiences with Turner syndrome. Whether I acknowledge it or not, it has a profound impact on who I am. The piece will be shared via a Facebook Page for a non-profit organization called A Walk for Ferrial. I have so much to say, and not everyone will want to hear it. In the past, I’ve actually left Facebook groups designed for women and girls with Turner syndrome due to conflicting issues. How do I manage not to be misunderstood? I’ll have to tread lightly, but if just one girl or young woman with Turner syndrome comes across my writing and recognizes that she is not alone, that there is someone else out there who has had to deal with the exact same issues, it will have all been worth it. I am fed up with political correctness and not discussing issues that need to be discussed.